The Rare Disease Foundation is a national charitable organization, founded in 2008.
There are more than 7,000 diagnosed rare diseases and many more undiagnosed. About 1 in 12 people (nearly three million Canadians) will have a rare disease in their lifetimes. Most rare disorders manifest at birth or early in childhood and are severe and chronic.
Our Microgrant Program kickstarts research on patient-focused projects. Already our program has helped develop treatments for 10 different diseases and led to the discovery of 15 genes causing rare disease. Complimenting this research, we develop Peer2Peer Resource Networks to foster organization and empowerment of the rare disease community. These local forums for cross-disease information sharing and social support operate from Victoria to St. John’s.
The Rare Disease Foundation is a registered Canadian charity, number 819326224RR0001